Charlie Gard will be laid to rest with his toy monkeys, his parents said in a statement Monday.
Charlie died Friday at London’s Great Ormond Street Hospital after he was taken off life support. He would have turned 1 this week.
The little boy, who made international headlines as his parents fought to bring him to the U.S. for experimental treatment, suffered from a rare genetic disorder called mitochondrial depletion syndrome.
“We should be planning Charlie’s first birthday, but instead we’re planning his funeral,” his mom, Connie Yates, told The Sun.
Charlie Gard’s parents give up legal fight to keep him alive
A family spokeswoman said Yates and Charlie’s father, Chris Gard, are still finalizing funeral arrangements but have decided that their little boy will be “buried with his beloved toy monkeys.” Charlie was often photographed from his hospital bed with the monkeys lying next to him.
It’s not clear if the family will make the funeral public.
Before Charlie’s death, his parents spent months trying to have him moved from Great Ormond to the U.S. Yates and Gard’s request sparked international attention and rallies, but was repeatedly denied with the hospital saying that moving Charlie would only cause him more suffering.
Last week, Yates and Gard announced they were dropping their bid to have Charlie treated in the U.S. after tests showed he had irreversible damage. The family, instead, asked to be able to take Charlie home to die but said the hospital “denied us our final wish.”
Charlie Gard, sick baby at center of hospital dispute, dies
Shortly after news of Charlie’s death, Pope Francis expressed his condolences, tweeting, “I entrust little Charlie to the Father and pray for his parents and all those who loved him.”
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